The ATHN Data Summit has always provided a unique opportunity for the blood disorders community to come together. Each year we welcome professionals from all ATHN-affiliated centers and our collaborating partners to share ideas, celebrate accomplishments, and advance knowledge.

This year we hosted our first virtual Data Summit in response to the COVID-19 pandemic travel restrictions. With over 700 registrants, the online event had record-breaking attendance! We heard from leading researchers in hemophilia, von Willebrand disease, rare coagulation disorders, gene therapy, and thrombosis. We shared new data quality initiatives, data quality integrations, and techniques for collecting and managing data. We learned about some new areas of research at ATHN including ATHN’s first interventional clinical trial (ATHN 16), new thrombosis studies, and the ongoing launch of ATHN Transcends. We got updates from our community and government partners. And, in the virtual format, we came together as a community dedicated to improving the lives of people affected by blood disorders.

Thank you
to our presenters

Thank you to all of the presenters who shared their research, knowledge, and experience with us at ATHN Data Summit 2020. We hope everyone gained valuable insights hearing from leading researchers and experts from the blood disorders community.

We excel together

ATHN Data Summit's mission is to celebrate the value of collaboration and excellence in data quality that supports vital research—because we excel together. ATHN Data Summit 2020 included:

    Research presentations from leading investigators in hemophilia, von Willebrand disease, thrombosis, gene therapy, and rare coagulation disorders
    Featured ground-breaking presentations on unconscious bias, health equity, and sex and gender in the blood disorders community
    2020 CARE Award recipients were announced and DREAM Award recipients presented their research
    Interactive Q&A sessions provided stimulating discourse
    Laid the foundation for ATHN’s future including ATHN’s first interventional trial, expansion into sickle cell disease, and electronic transfer of data from electronic health records systems (EHRs)
    Featured posters for research studies; includes ATHN research studies, DREAM Award projects, and projects from our government and community partners—all searchable by category
    Showcased developments and updates from ATHN’s Industry Consortium and Community Partners

View the Agenda

Thank You

We are grateful to the ATHN Industry Consortium and Community Partners for their generous contributions and support.

For any questions about the ATHN Data Summit, please contact

Thank you to the ATHN Industry Consortium:

Thank you to our Community Partners: