Welcome to ATHN Data Summit 2025
Each year, the ATHN Data Summit invites colleagues from our ATHN-affiliated centers, collaborating partners, and community-based organizations to come together, share discoveries, and celebrate progress on behalf of the rare disorders community.
Where Data Drives Discovery
Our theme for ATHN Data Summit 2025 is Where Data Drives Discovery. We’re excited to bring together leading experts in blood disorders research and top clinicians to share their perspectives through ground-breaking presentations and robust Q&A sessions. Together, we’ll explore how ATHN’s unique data infrastructure supports research projects that leverage data to answer scientifically and clinically meaningful questions—and much more.
Call for Abstracts
ATHN is seeking abstracts that showcase the important work being done by investigators at ATHN-affiliated centers and our collaborating partners throughout the blood disorders community.
The abstract submission deadline is July 25, 2025.
To submit an abstract, the following criteria must be met:
- At least one of the authors must be an ATHN-affiliated treatment center investigator or a collaborating partner.
Research projects and/or studies must fit into one of the following categories:
- ATHN research projects – abstracts on methods, interim results, primary aims, secondary aims, or sub-studies
- ATHNdataset – findings from queries or projects utilizing data from the ATHNdataset
- ATHN government grant projects – abstracts focused on new data or program component results of interest to the wider community
- Quality improvement (QI) projects – abstracts on QI initiatives that aim to measure and/or improve the quality of healthcare delivery within the U.S. HTC Network (USHTCN)
- Industry Consortium, government, or community partner projects – abstracts that have a clear connection to ATHN research projects or federal grant deliverables
- DREAM Award and CARE Award projects – abstracts/plans for poster or oral presentations as required by award contract
- ATHN’s organization priorities – abstracts supporting projects such as expanding research capabilities and data quality initiatives
Abstract format should include the following information:
- Title
- Background
- Aims
- Methods
- Results
- Conclusions
Maximum length: 500 words (not including author details, titles, tables, and figures)
For previously presented posters, please submit a PDF version.
Submit your abstract to support@athn.org with the subject line “ATHN Data Summit 2025 Abstract.”
Abstracts must be submitted by July 25, 2025. All abstracts will be reviewed by ATHN, and if accepted, you will be notified by August 4 and asked to create a poster by September 8 to be shared at ATHN Data Summit 2025.
Register Today
Registration is open for ATHN Data Summit 2025! As always, there’s no fee to participate, but you must be registered so we can send you the access link for the virtual event. We can’t wait to connect with you this fall!
Thank You
As always, we are grateful for the generous contributions and support from the ATHN Industry Consortium and Community Partners.
Thank you
to the ATHN Industry Consortium
Thank you
to our Community Partners
For any questions about the ATHN Data Summit, please contact support@athn.org