National Quality Improvement for Transition from Pediatric to Adult Care: Evaluation of a Pilot Program
Authors: Forsberg A, Malouin R, Palmer L, Thornburg C, Dunn S, Casto L, Hill J, Koval B, Oldfield D, Foster-Johnson VL International Society on Thrombosis and Hemostasis (ISTH) Congress, July 8-13, 2017, Berlin, Germany
Novel Approach to and Results of Genetic Analysis of 3000 Hemophilia Patients Enrolled in the My Life, Our Future Initiative
Authors: Johnsen JM, Fletcher S, Huston H, Roberge S, Martin B, Kircher M, Josephson N, Shendure J, Ruuska S, Koerper MA, Meltzer L, Pierce G, Aschman DJ, Konkle B American Society of Hematology (ASH) Annual Meeting, December 3-5, 2016, San Diego, CA
Genetic Analysis of Bleeding Disorders
Authors: Edison E, Konkle BA, Goodeve AC World Federation of Hemophilia, Orlando, FL, July 24-28, 2016.
A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population
Authors: Sood SL, Cheng D, Ragni MV, Kessler CM, Quon DV, Shapiro AD, Key NS, Manco-Johnson MJ, Cuker A, Kempton CL, Wang TF, Eyster E, Kuriakose P, von Drygalski A, Gill J, Paroskie A, Kouides PA, Escobar MA, Leissinger CA, Galdzicka S, Aschman DJ and Konkle BA American Society of Hematology 57th Annual Meeting, Orlando, FL, December 3-8, 2015.
Causes of Death Among Patients with Bleeding Disorders Receiving Care at US Hemophilia Treatment Centers, October 2011-December 2014
Authors: Oakley M, Manco-Johnson M, Dupervil B, Dudley R, Recht M, Voutsis M, Byams V and Aschman DJ American Public Health Association Annual Meeting, Chicago, IL, October 31–November 4, 2015.
My Life, Our Future, Genotyping for Progress in Hemophilia
Author: Konkle BA Food and Drug Administration Workshop: New Methods to Predict Immunogenicity of Therapeutic Coagulation Proteins, Bethesda, MD, September 17-18, 2015.
ATHN Research 2015 and Beyond: A Briefing for the Patient Community
Authors: Pipe S, Forsberg A and Aschman DJ National Hemophilia Foundation 67th Annual Meeting, Dallas, TX, August 13-15, 2015.
CDC’s Surveillance Programs in Hemophilia
Authors: Soucie M, Pyle M, Byams V and Dudley B National Hemophilia Foundation 67th Annual Meeting, Dallas, TX, August 13-15, 2015.
Technical Needs Assessment of US HTC Staff
Author: Forsberg A International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada, June 23, 2015.
F8 and F9 Gene Variants, CADD Scores and Hemophilia Severity in the My Life, Our Future Genotyping Project
Authors: Johnsen J, Fletcher SN, Huston H, Kircher M, Aschman DJ, Bias V, McAlister S, Shendure J and Konkle B International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada, June 23, 2015.
Technical Assistance Priorities: Findings from a National Survey of Federally Funded Hemophilia Treatment Centers in the United States
Author: Forsberg A American Public Health Association, New Orleans, LA, November 14, 2014.
ATHN Research: A Brief for the Patient Community
Authors: Pipe S, Forsberg A and Aschman DJ National Hemophilia Foundation 66th Annual Meeting, Washington, DC, September 18-20, 2014.
Patients’ Perceptions of Care at the US Federally Funded Hemophilia Treatment Centers
Authors: Forsberg A, Butler RB, Cutter S, Curtis R, Shapiro AD, Sharathkumar A and Aschman DJ World Federation of Hemophilia, Melbourne, Australia, May 11-15, 2014.
MCHB-Funded Hemophilia Network and the Creation of ATHN: Information Infrastructure to Improve Emergency and Disaster Preparedness
Author: Aschman DJ HRSA Office of Health Information Technology Grantee Conference, December 2007.