ATHN Committees

Our committees provide insightful direction to help us deliver results that benefit the bleeding and clotting disorders community today while focusing on the needs of tomorrow. More than 100 individuals share their time, energy, and knowledge in the areas of science, clinical practice, infrastructure operations, and governance. We are extremely proud and appreciative of their enthusiastic dedication and support.

Science and Translation to Practice Committees

Provides guidance to the Board regarding ATHN’s research agenda, demonstration projects, design of studies, site credentialing, and the core capabilities ATHN needs in order to facilitate research across study sites, as well as overseeing research project review with partners such as Hemostasis & Thrombosis Research Society (HTRS).

Research Committee Members
Barbara Konkle (Chair), MD, Bloodworks Northwest (Puget Sound Blood Center)
Janna Journeycake, MD, Children’s Medical Center of Dallas
Bruce Luxon, MD, PhD, Georgetown University Hospital
Marilyn Manco-Johnson, MD, University of Colorado Denver Hemophilia and Thrombosis Center
Bobby Tran, Patient Representative, MD, Emory/Children’s Healthcare of Atlanta Comprehensive Hemophilia Program

Learn more about how ATHN works with researchers.

Responsible for refining a methodology for validating and ensuring quality data for ATHN projects and studies with a focus on the ATHNdataset and Community Counts public health surveillance.

Data Quality Committee Members
Jeffrey Hord (Chair), MD, Children’s Hospital Medical Center of Akron
John Drake, RN, MS, Gulf States Hemophilia and Thrombophilia Center
Becky Dudley, LCSW, ATHN
Brandi Dupervil, MPH, CDC Representative
Sally Muehle, CCRP, University Hospitals Cleveland Medical Center
Michael Recht, MD, PhD, Oregon Health & Science University
Anjali Sharathkumar, MD, Iowa Hemophilia and Thrombosis Center
Michael Wang, MD, University of Colorado Denver Hemophilia and Thrombosis Center
Crystal Watson, ATHN
Brian Wicklund, MD, PhD, Children’s Mercy Hospital, Kansas City
Guy Young, MD, Children’s Hospital Los Angeles

Guides the selection of priorities in rare bleeding disorders, recommends collaborative studies to the ATHN Board, and ensures the scientific integrity of projects and publications related to rare disorders.

Rare Coagulation Disorders Committee Members
Suchitra Acharya (Co-chair), MD, Long Island Jewish Medical Center Comprehensive Hemophilia Center
Amy Shapiro (Co-chair), MD, Indiana Hemophilia and Thrombosis Center
Regina Butler, RN, Children’s Hospital of Philadelphia (CHOP)
Shannon Carpenter, MD, Children’s Mercy Hospital, Kansas City
Donna DiMichele, Advisor, MD, National Institutes of Health/NHLBI
Roshni Kulkarni, MD, Michigan State University Center for Bleeding Disorders & Clotting Disorders
Marilyn Manco-Johnson, MD, University of Colorado Denver Hemophilia and Thrombosis Center
Diane Nugent, MD, Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders
Skye Peltier, MPH, University of Minnesota Medical Center, Fairview
Joanne Porter, MD, Albany Regional Hemophilia & von Willebrand Treatment Center

Guides the development of an ATHNdataset for thrombosis, recommends collaborative studies to the ATHN Board, and ensures the scientific integrity of core terminology, projects, and publications related to thrombosis.

Thrombosis Committee Members
Maria De Sancho (Co-chair), MD, Weill Cornell Medical College
Madhvi Rajpurkar (Co-chair), MD, Children’s Hospital of Michigan Hemostasis and Thrombosis Center
Henny Billett, MD, Montefiore Medical Center
Erin Cockrell, DO, St. Joseph’s Hospital Center for Bleeding and Clotting Disorders
Chris Holmes, MD, PhD, Vermont Regional Hemophilia Center
Tracy Hughes, RN, Vanderbilt University Medical Center
Julie Jaffray, MD, Children’s Hospital, Los Angeles
Nicole Kucine, MD, Weill Cornell Medical College
Elaine Majerus, MD, PhD, Washington University Center for Treatment of Bleeding and Blood Clotting Disorders
Maura Malone, RN, MS, Dartmouth-Hitchcock Comprehensive Hemophilia and Thrombosis Center
Jim Munn, RN, MS, University of Michigan Hemophilia and Coagulation Disorders Program
Kavita Patel, MD, Emory/Children's Healthcare of Atlanta Comprehensive Hemophilia Program
Leslie Raffini, MD, Children’s Hospital of Philadelphia (CHOP)
Anjali Sharathkumar, MD, Iowa Hemophilia and Thrombosis Center
Rick Shearer, University of Colorado Denver Hemophilia and Thrombosis Center
Robert Sidonio, Jr., MD, Emory/Children’s Healthcare of Atlanta Comprehensive Hemophilia
Amy Stillings, CCRC, Children’s Hospital, Los Angeles
Donald Yee, MD, Texas Children’s Hemophilia & Thrombosis Center/Baylor College of Medicine
Guy Young, MD, Children’s Hospital Los Angeles

Learn more about our work as active participants in the first thrombosis project.

Operational Committees

Ensures that an accurate and compelling communications strategy cultivates collaboration between ATHN and the bleeding and clotting disorders community, including ATHN Affiliates, the National Hemophilia Program Coordinating Center (NHPCC), government and industry partners, community patient advocacy organizations, and the patients they serve.

Community Relations and Communications Committee Members
Christine Guelcher (Chair), MS, PPCNP-BC, Children’s National Hemophilia Center
Mary Lou Damiano, RN, Arizona Hemophilia and Thrombosis Center / University of Arizona Health Sciences Center
Karen Droze, MS, ATHN
Becky Dudley, LCSW, ATHN
Kara Garner, RN, MSN, NP, St. Luke’s Hemophilia Center
Steven Humes, MM, MHP, Harold R. Roberts Comprehensive Hemophilia Diagnostic and Treatment Center/University of North Carolina at Chapel Hill
Kathleen Van Gorden, KVG Communications, Inc.
Tamara Vogel, Oregon Health & Science University

Conducts pre-release testing and reviews activities to help ensure the growth of a secure, stable, and flexible web-based information infrastructure with standardized content that is expandable to other disorders, service providers, and uses (including research). This infrastructure serves as the solid foundation for ATHN's future.

Technology Committee Members
Pam Bryant (Chair), Emory/Children’s Healthcare of Atlanta Comprehensive Hemophilia Programs
Rebecca Hauke, University of Michigan Hemophilia and Coagulation Disorders Program
Susan Lattimore, RN, Oregon Health and Science University
Rick Shearer, BS, University of Colorado Denver Hemophilia and Thrombosis Center
Alan Shier, ATHN
Craig Steffens, Emory/Children’s Healthcare of Atlanta Comprehensive Hemophilia Program
Crystal Watson, ATHN

Governance Committees

Oversees ATHN's financial policies and practices, along with recommending and monitoring the annual budget, annual audit, and ATHN investments. Also provides guidance to the Board related to the fiscal well-being of ATHN.

Budget and Finance Committee Members
Pam Betz (Chair), Premier Management and Business Consulting
Patricia Dominic, Former CEO Hemophilia of Georgia
Robert Fox
Jenni Hovell, MHA, Mayo Clinic
Fred Nishioka, PharmD, Stanford University
Tamara Vogel, MBA, MS, Oregon Health & Science University

Acting as a liaison between the Board and ATHN's president and CEO, this committee suggests policies to the Board and ensures that all Board policies are carried out. It may also act and pass on routine business matters or take interim action on urgent matters, which are reviewed by the Board at its next meeting.

Executive Committee Members
Michael Recht (Chair), MD. PhD, Oregon Health & Science University
Pam Betz, Premier Management and Business Consulting
Christine Guelcher, MS, PPCNP-BC, Children’s National Hemophilia Center
Ellis Neufeld, MD, PhD, St. Jude Children’s Research Hospital
Steve Pipe, MD, University of Michigan Hemophilia and Coagulation Disorders Program

Learn more about ATHN's Board of Directors.

Develops general criteria regarding qualifications and selection of Board members, recommends candidates for election to the Board, and otherwise supports the Board in succession planning and efficient transition consistent with ATHN by-laws, policies, and procedures.

ATHN Nominating Committee Members
Ellis Neufeld (Chair), MD, PhD, St. Jude Children’s Research Hospital
Christine Guelcher, MS, PPCNP-BC, Children’s National Hemophilia Center, Washington, DC
Sarah O'Brien, MD, Nationwide Children's Hospital Hemostasis and Thrombosis Center, Columbus, OH

Get involved with ATHN. If you are you interested in serving on one of our committees, we welcome you to apply today.

Recommends priorities for outcome measures and tools to be used in ATHN projects and a plan for funding.

Outcomes Committee Members
Mark Skinner, Institute for Policy Advancement, Ltd.

In addition, each major project or research study is managed through a Steering Committee and work groups.

If you are you interested in serving on one of our committees, we welcome you to apply today.

To explore project-specific committees and work groups, view our national projects and the work of the National Hemophilia Program Coordinating Center