NHPCC Committees + Work Groups

The goals of the NHPCC are advanced through an organizational structure of committees and work groups. Each brings together regional leaders, subject matter experts, and community stakeholders including consumers.

Committees

NHPCC Steering Committee
The Steering Committee provides leadership and project oversight on behalf of the NHPCC and its stakeholder groups.
Co-chairs – Karen Droze, Director, NHPCC and Amy Shapiro, MD, Medical Director, NHPCC

Advisory Committee
Comprised of a broad group of stakeholders, the Advisory Committee develops and shares initiatives for outreach to underserved people with bleeding disorders, as well as identifies areas for national collaboration to expand genetic services and access to care.
Chair – Amy Shapiro, MD, Medical Director, NHPCC

Regional Leadership Committee
The Regional Leadership Committee consisting of the regional directors, medical directors and regional coordinators advises the NHPCC on collaborative initiatives that facilitate, coordinate, and evaluate culturally sensitive activities to optimize the health of individuals with bleeding and clotting disorders throughout their lifespan and across generations.
Co-chairs – Christine Kempton, MD and Susan Lattimore, BSN

Work Groups

Genetics Work Group
The Genetics Work Group developed and is now implementing a strategy for identifying and sharing resources within and outside the national HTC network, and for creating programs and educational materials that translate the science of genetics to the care of patients with bleeding and clotting disorders.
Co-chairs – Michelle Alabek, MS, CGC and Katie Bergstrom, MS, CGC
More on Genetics

340B Work Group
The 340B Work Group ensures that HRSA and its stakeholders, as well as patients and consumers recognize the importance of this program to maintaining the comprehensive care services of HTCs.
Co-chairs – Laurel McKernan, RN, MS and Marisela Trujillo, MSW
Watch 340B Video [Video Short (5.40 minutes) Video (9.49 minutes)]

Transition Work Group
The Transition Work Group compiles the evidence supporting quality transition services, identifies best practices and develops tools and resources to assist HTC staff in improving the transition of children and adolescents from pediatric to adult care.
Chair – Stacy Croteau, MD

Staff Development Work Group
The Staff Development Work Group reviews the needs of HTC staff to increase knowledge and skills, as well as identifies resources for a standardized approach to training, ensuring a consistent foundation for all providers.
Chair – Karen Droze, Director, NHPCC
View Orientation Guideline

Quality Improvement Work Group
The Quality Improvement Work Group drives the NHPCC’s quality improvement agenda that includes identifying and monitoring of national metrics, educating staff on quality improvement basics, and overseeing quality improvement initiatives at the HTC level.
Chair – Nathan Hagstrom, MD
QI Pilot Coach Engagement

Technical Assistance Oversight Work Group
Based on results from the patient and technical needs assessments, this group recommends a process for prioritizing and implementing technical assistance across regional networks and to consumers.
Co-Chairs – Regina Butler, RN, Regional and Robert Gillespie, MSW, LCSW

Technology Work Group
The Technology Work Group is the liaison between the technology staff of ATHN and the NHPCC. They provide input on how to leverage Clinical Manager to collect and report information needed for quality improvement and other strategic activities of the NHPCC.
Chair – Pam Bryant
More on Clinical Manager

Communications Work Group
The Communications Work Group ensures that NHPCC programs and results are accurately communicated in a timely manner to the bleeding and clotting disorders community. This includes but is not limited to ATHN Affiliates, government and private partners, community-based patient advocacy organizations, and the patients we serve.
Chair – Christine Guelcher, PNP

In addition to these work groups, several task forces have been established by the Advisory Committee to address more short-term goals. These include Latino outreach, carriers, von Willebrand disease transition, and transition-challenged populations.

Are you interested in serving on one of our work groups? Contact NHPCC Director Karen Droze at kdroze@athn.org.