Open and transparent processes
ATHN incorporated, in July 2006, as a non-profit organization serving the public trust. Open and transparent processes are the underpinning of ATHN activities. Find out how our processes work.
- ATHN Affiliate application process confirms the relationship with hemophilia and thrombosis treatment centers who support the vision, mission and values of ATHN and commit to collect data on behalf of ATHN;
- Patient consent process provides patients a choice to opt-in to ATHN studies;
- Data manager request process enables ATHN Affiliates to seek subsidy for local data management support;
- Standardized data collection process applies uniform tools, terminology and quality standards across all ATHN Affiliates;
- Peer review processes guard access to data and ensures that ATHN projects support clinical outcomes analysis, research, advocacy and public health reporting.