Is ATHN The First Of Its Kind? Or Are There Other Similar Entities?

Within the bleeding and clotting community, ATHN is, in many ways, a first.  However, collaboratives in other clinical areas have been successful and can serve as a model for development.  For example, the Children’s Oncology Group is a research collaborative focused on children’s oncology issues.   The group registers children and adolescents through member institutions with the goal of having clinical information about every child diagnosed with cancer in the U.S. and Canada.   Similarly, the Cystic Fibrosis Foundation built upon its network of accredited care centers to create a research network.