What Is The Structure Or Vehicle For ATHN To Engage The Hemophilia Community?

To attain its vision, ATHN seeks to foster collaboration with patients, providers, suppliers, government agencies and non-profit organizations in the community.  During the planning meetings prior to the incorporation of ATHN, creation of a Resource and Liaison Group, now called the Community Liaison Group, with representation of key organizations was envisioned.  This group will meet for the first time in November, 2007.  Collaborating organizations were invited to appoint a representative who will provide advice to the ATHN Board of Directors, facilitate alignment with broader community needs and become a conduit for communication with their parent organization.   Some of the organizations that have agreed to participate are:  National Hemophilia Foundation (NHF), Hemophilia Federation of America (HFA), National Alliance for Thrombosis and Thrombophilia (NATT), Hemophilia and Thrombosis Research Society (HTRS), World Federation of Hemophilia (WFH), Centers for Disease Control and Prevention (CDC), Maternal and Child Health Bureau (MCHB), the Food and Drug Administration (FDA), and the National Heart, Lung and Blood Institute (NHLBI).  This list by no means precludes other organizations from becoming involved.