What Is The Plan For Patients Treated Outside The Federally Funded HTCs? Will They Participate In Data Collection?

At this time, ATHN’s vision encompasses the federally funded Hemophilia Treatment Centers and non-federally funded entities. The other entities HTCs might be university-affiliated programs conducting clinical research, community-based providers of hemostasis services, and/or thrombosis treatment centers. Their involvement could be on a continuous basis or simply limited to a particular project. We anticipate that integrating new entities into ATHN takes time, money and commitment, so we would phase in non-federally funded entities once the federally-funded centers are successfully up and running, and according to some guidelines which would have to be defined (for example number of patients served, area of country, etc.).

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