What Is The Plan For Patients Treated Outside The Federally Funded HTCs? Will They Participate In Data Collection?
Submitted by brazeej on Thu, 09/06/2007 - 11:26am
At this time, ATHN’s vision encompasses the federally funded Hemophilia Treatment Centers and non-federally funded entities. The other entities HTCs might be university-affiliated programs conducting clinical research, community-based providers of hemostasis services, and/or thrombosis treatment centers. Their involvement could be on a continuous basis or simply limited to a particular project. We anticipate that integrating new entities into ATHN takes time, money and commitment, so we would phase in non-federally funded entities once the federally-funded centers are successfully up and running, and according to some guidelines which would have to be defined (for example number of patients served, area of country, etc.).




