How Many Individuals Participate In CDC’s UDC Today?

Today, over 80% of hemophilia patients treated at HTC’s choose to participate in the Universal Data Collection (UDC) project sponsored by the CDC.  Many also choose to participate in other specific clinical studies through their HTC.  We believe it is important that consumers be willing to share their de-identified clinical information with ATHN to conduct much needed research in order to preserve access to high cost, but effective, necessary and expected, therapies and regimens (e.g., immune tolerance, prophylaxis, etc.).  We believe that once informed, patients will recognize the enduring benefits of ATHN, and not only consent to be a part of this important community resource, but ask to be part of it.