What Is The Commercial Value Of The Data?
The question you are asking has a number of views. What is the value of solid clinical evidence to support the development of treatments for our patients? What is the value of reducing the time to conduct a study because a trained network can be deployed? What is the value of improving care and outcomes for the bleeding and clotting disorders community? What is the value of good clean data in establishing reimbursement policies and treatment access provisions? One thing is certain: ATHN will not have access to, nor sell, patient identifying information (e.g., name, street address, telephone number) for direct marketing or other purposes. We do not know the real commercial value of the data, in terms of dollars, to any entity, and it is important to stress that this is not our goal. For now, to the extent we are able to obtain funding to conduct select projects that improve care and outcomes as well as demonstrate our capabilities and test our infrastructure, we will influence the value of the data as well as ATHN’s services in the future.




