ATHN is rolling out customized web-based tools that enable clinicians to gather, manage, and analyze patient medical information specific to the needs of the blood disorders community. ATHN will maintain and grow a stable, reliable information infrastructure that can expand to other disorders, service providers, and uses, including research.
- WebTracker. WebTracker is a powerful data management tool that enables hemophilia treatment centers to record data once and reuse it over and over again—for care, clinic management, research, and reporting to federal/state agencies. This new software also makes it possible for patients who choose to participate in the ATHNdataset to share a limited amount of non-identifiable data related to their care with ATHN. WebTracker reduces duplicate data entry, requires less IT support locally, and protects confidentiality.
WebTracker provides ATHN Affiliates with a powerful clinical patient management tool:
- Specific for bleeding disorders
- Secure and backed-up
- Makes data available to the treatment center for care, surveillance, and research
- ATHNadvoy. Responding to the community’s desire for one national database, Baxter has donated Advoy® to ATHN. Renamed ATHNadvoy and managed by ATHN, patient data can be stored and managed side-by-side with other data under the stewardship of ATHN. Treatment center and patient consent was received prior to the transfer of historical data.
ATHNadvoy is the first and most-used electronic log for bleed and infusion
reporting. ATHNadvoy makes it easier than ever for patients to electronically log bleeds and infusions in minutes from a computer or mobile device. For the first time ever, patient information can be protected and managed side-by-side with comprehensive clinical information at more than 130 ATHN-affiliated treatment centers. This ensures patient confidentiality while further advancing clinical understanding.
Because ATHNadvoy is managed by ATHN, patients and healthcare providers can gather and review important treatment details—and detect trends that may improve clinical outcomes.