Take control of your care. Wherever life takes you.
Welcome to the American Thrombosis and Hemostasis Network’s (ATHN) resource for patients and families. Here you’ll find educational information for you and your family about ATHN partnerships and programs, as well as links to critical emergency resources. We encourage you to familiarize yourself with the patient education materials here to learn more about how ATHN can help you.
ATHNdataset Patient Education Brochure
Our educational brochure answers questions about the ATHNdataset and how it is helping patients and families in the hemophilia community:
Emergency Preparedness Resources
To help you be prepared for an emergency situation or a natural disaster, here are some helpful links to patient resources and information:
ATHNready Program Information
- Download Patient Education Flyer - ATHNready
- Download Article: Be Prepared – Make Sure You’re Ready!
Find a Hemophilia Treatment Center (HTC)
In conjunction with the Centers for Disease Control and Prevention (CDC), ATHN has mapped the locations of all treatment centers around the country. Patients confronted with an unexpected emergency, displaced by disaster, or moving to another location can quickly and easily identify a comprehensive treatment center anywhere in the U.S.
If your Hemophilia Treatment Center closes because of a declared emergency or disaster, contact HANDI, the NHF’s Information Resource Center at 1-800-42-HANDI for information about other HTC locations and other emergency resources.
For information during non-emergency times or regular business hours, HANDI staff members are available Monday through Friday, 9:00am to 5:30pm EST, to answer your questions. Call 1-800-42HANDI or email firstname.lastname@example.org.
ATHNready Personal Health Report
To prepare for an emergency, the National Hemophilia Foundation (NHF) recommends that patients gather important emergency medical information and keep it with them. This is the most important step to ensure uninterrupted treatment. To help families with this critical piece of planning, ATHN has worked with its Affiliates to introduce ATHNready Personal Health Report. Through the ATHNready program, treatment centers systematically provide patients with NHF-recommended information — in the convenience of a portable pocket-sized flash drive — at no cost.
Your ATHNready Flash Drive*
You can use your ATHNready tool, produced as a pocket-sized flash drive by your treatment center, to store up-to-date personal health information to ensure that critical care information is available where and when you need it.* This information can be used to help your doctors make decisions about your care in the event of an emergency. Participants recognize the value of this tool and find the flash drive helpful for a broad number of uses:
- Advocating for their or their child’s care with medical personnel
- Educating medical personnel
- Storing information like an emergency medical record
- Printing Personal Health Reports for important gatekeepers
- Complementing other emergency planning actions (e.g., Medic Alert and travel letters)
With ATHNready, patients and their families can enjoy peace of mind knowing that the health information contained in their Personal Health Report and other detailed information is backed-up regularly and is available from their treatment center, so that appropriate care can be provided in a timely manner during an emergency or while traveling.
For more information about this tool, ask your treatment center or contact or email ATHN.
"Having key parts of my personal health record on a flash drive allows me to manage and control my own information. I can use it when I'm traveling, in an emergency, or even at home to print out my information. I can now feel confident that I will be able to get the right treatment quickly, wherever and whenever I need it."
* The contents of the ATHNready flash drive are not password protected. It is the patient’s responsibility to maintain appropriate custody of the ATHNready flash drive to ensure confidentiality. Health care providers should convey this responsibility to patients and/or caregivers using the ATHNready program.