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Visit the Plasminogen Registry

PlasminogenRegistry.org

project portfolio

Project TitlePrinciple InvestigatorProposed SponsorProject StatusSite Selection

ATHN Infrastructure Development

ATHN

Novo Nordisk® (founding unrestricted grant)Project initiatedUltimately available to all ATHN Affiliates

Plasminogen Deficiency: Prevalence Study - PlasminogenRegistry.org

Amy D. Shapiro, MD (Ashapiro@ithc.org); Rakesh Mehta, MD

Baxter BioscienceProject LiveHTC's in the US and Canada

HTC Patient Data Collection Infrastructure and Disaster Preparedness

ATHN

Centers for Disease Control and PreventionProject underwayInitial pilot sites; then open to all 134 HTCs

CHAVI 014 Investigation of Gene Variants Associated with Resistance and Susceptibility to HIV-1 Infection in HIV-1 Exposed but Uninfected Individuals with Hemophilia A

Barton Haynes, MD, Duke Human Vaccine Institute for the Center for HIV/AIDS Vaccine Immunology (CHAVI)

Amanda Stemke (amanda.stemke@duke.edu)

Division of AIDS, US National Institute of Allergy and Infectious Diseases, NIHRecruitment underway; Investigator meeting August 20, 2008HTCs in the US

International Trial Pharmacokinetics, Safety & Efficacy of a High Purity Factor X Concentrate

Miranda Norton (Miranda.norton@bpl.co.uk)

Bio Products Laboratory (BPL) Investigator Recruitment Underway HTCs for adult and pediatric patients with Factor X deficiency

Rare Bleeding and Clotting Disorders Pilot Project

ATHN

Baxter BioscienceProject initiatedUltimately available to all ATHN Affiliates