| Project Title | Principle Investigator | Proposed Sponsor | Project Status | Site Selection |
|---|---|---|---|---|
ATHN Infrastructure Development | ATHN | Novo Nordisk® (founding unrestricted grant) | Project initiated | Ultimately available to all ATHN Affiliates |
Plasminogen Deficiency: Prevalence Study - PlasminogenRegistry.org | Amy D. Shapiro, MD (Ashapiro@ithc.org); Rakesh Mehta, MD | Baxter Bioscience | Project Live | HTC's in the US and Canada |
HTC Patient Data Collection Infrastructure and Disaster Preparedness | ATHN | Centers for Disease Control and Prevention | Project underway | Initial pilot sites; then open to all 134 HTCs |
CHAVI 014 Investigation of Gene Variants Associated with Resistance and Susceptibility to HIV-1 Infection in HIV-1 Exposed but Uninfected Individuals with Hemophilia A | Barton Haynes, MD, Duke Human Vaccine Institute for the Center for HIV/AIDS Vaccine Immunology (CHAVI) Amanda Stemke (amanda.stemke@duke.edu) | Division of AIDS, US National Institute of Allergy and Infectious Diseases, NIH | Recruitment underway; Investigator meeting August 20, 2008 | HTCs in the US |
International Trial Pharmacokinetics, Safety & Efficacy of a High Purity Factor X Concentrate | Miranda Norton (Miranda.norton@bpl.co.uk) | Bio Products Laboratory (BPL) | Investigator Recruitment Underway | HTCs for adult and pediatric patients with Factor X deficiency |
Rare Bleeding and Clotting Disorders Pilot Project | ATHN | Baxter Bioscience | Project initiated | Ultimately available to all ATHN Affiliates |