athn commitees
Administrative Committees
2010 Budget and Finance Committee
- To review financial policies, requirements and practices of the organization, recommend and monitor the annual budget, oversee the annual audit and the investment subcommittee and provide guidance to the Board related to the fiscal well being of ATHN.
2010 Development Committee
- To secure adequate funding through contracts, grants and other contributions for research, operations and capital endowment providing ATHN the long-term and stable support needed to carry out its mission.
2010 ATHN Nominating Committee
- To develop general criteria regarding qualifications and selection of Board members, recommends candidates for election to the Board of Directors and otherwise supports the Board in succession planning and efficient transition consistent with ATHN by-laws, policies and procedures.
2010 Bylaws Committee
- To maintain ATHN by-laws as an evolving reflection of the organization.
2010 CEO Evaluation and Compensation Committee
- To determine various elements of executive compensation and executive succession planning, conduct evaluation of the CEO as well as to provide guidance to the Board related to management’s proposals regarding certain employee benefit plans and incentive programs.
Operational Committees
2010 Community Relations and Communications Committee
- To ensure that an accurate and compelling communication strategy cultivates collaborative relationships between ATHN and the bleeding and thrombosis community, including but not limited to ATHN Affiliates, government and industry partners, community based patient advocacy organizations and the patients they serve.
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Wanda Foster, Co-chair
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Christine Guelcher, Co-chair
2010 Privacy, Security and Data Access Committee
- To provide guidance to the Board and oversight of ATHN’s operations to ensure privacy of patient data, security at the ATHNdataset, as well as open and transparent processes for data access and sharing consistent with ATHN’s core values.
2010 Technology Committee
- To propose and oversee maintenance and growth of a secure, stable and flexible web-based information infrastructure that would create a secure, stable and flexible infrastructure with standardized content as the solid foundation for ATHN’s future.
2010 Advoy Working Group (Joint Community Relations and Technology)
- To support the transition and integration of ATHNadvoy following the donation from Baxter.
Research Committees
2010 Research Committee
- To provide guidance to the Board regarding ATHN’s research agenda, site credentialing and the core capabilities to be developed in order to facilitate research across study sites.
2010 Safety Management Working Group
- To develop and maintain ATHN’s safety management plan consistent with FDA regulations for adverse events, including any prospective monitoring systems or projects.
2010 Data Quality Working Group
- To develop and pilot test a methodology to validate and help ensure quality data for the ATHNdataset and other studies.
2010 Project Review Panel
- To implement an open and transparent screening process for reviewing project ideas generated by ATHN committees, ATHN Affiliates, or other entities.
- Membership
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Jeanne Lusher, Co-Chair
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Judith Andersen, Co-Chair
Clinical Committees
2010 Rare Coagulation Disorders Committee (By Working Group)
- To guide the development of rare bleeding disorders templates for WebTracker and a related research portal, recommend collaborative studies to the ATHN Board and ensure the scientific integrity of projects and publications related to rare disorders.
- PAI-1, plasminogen, HHT
- Anticoagulation Proteins and Fibrinogen WG
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Suchitra Acharya, Co-chair
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Marilyn Manco-Johnson, Co-chair
- FXIII, platelet disorders WG
- Vitamin K proteins, FV, FV-VIII, FXI
2010 Thrombosis Committee
- To establish priorities in the development of a thrombosis module for WebTracker, recommend collaborative studies to the ATHN Board and ensure the scientific integrity of projects and publications related to thrombosis.
