Welcome to ATHN

Our Top Stories

ATHN Transcends
As ATHN’s flagship observational study, ATHN Transcends streamlines data collection and administration for our ATHN Affiliates, while supporting investigators in the exploration of scientifically meaningful questions to determine the safety, effectiveness, and practice of therapies used in the treatment of hematologic disorders. ATHN Transcends is open at treatment centers across the country—and it’s growing.
SOC 2 Type II Compliance
At ATHN, we know the importance of data security and privacy—for us and for our ATHN Affiliates and other partners. We’re proud to receive SOC 2 Type II compliance in all five trust principles: security, availability, processing integrity, confidentiality, and privacy.

Healthy People 2030 Champion
ATHN is proud to have been recognized as a Healthy People 2030 Champion by the Office of Disease Prevention and Health Promotion. This distinction is awarded to organizations that have demonstrated interest and commitment to disease prevention and health promotion, as well as being aligned with the HP2030 program vision of “a society in which all people can achieve their full potential for health and well-being across the lifespan.”
ATHN Data Quality Counts
This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to build data management capacity and enrich the ATHNdataset.

Office of Public Health Initiatives
The ATHN Office of Public Health Initiatives (OPHI) aims to leverage ATHN’s capabilities to support medically underserved populations by strengthening our partnerships throughout the rare disorders community. We’re working to establish a Health Equity Program, expand ATHN’s focus on sickle cell disease, and more.